Marketers Can Help Bridge Gap For Parents, Patients, Caregivers
Any change can be daunting. But for a pediatric patient with a rare disease who is faced with transitioning into adult care, it can be exponentially more intimidating. While parents have often painstakingly developed a support system over the years of managing their child’s care, transition programs that guide young adult patients are scarce. In fact, according to the National Survey of Children with Special Healthcare Needs, more than 50% of the parents reported that no one ever spoke to them about the upcoming need for their child to switch to adult care.